“It is a great opportunity to be one of the first to receive a new treatment”
Born in Viveiro (Lugo) and now living in Ireland, Jorge Marino is a young civil engineer who travels every fortnight to Barcelona to take part in the trial that Dr Jordi Monés is conducting on Stargardt’s disease.
“When I was at university, at the age of 23, in a short period of time I realised that I couldn’t see what was on the board. It was the first warning sign”, Jorge explains. “I first thought that it was to do with the strength of my glasses but after visiting the optician I saw the doctor, who was the one that gave me the proper diagnosis”.
Over the next six years, Jorge has lived his life with the greatest possible “normality”. While he is preparing for his civil service exams, he is working as a cook in Ireland. “I think that the fact I’m young gives me a better capacity to adapt and overcome challenges. If I’m at the airport and I can’t read the boards to find out my departure gate, I take a photo. To see my phone, I enlarge the letters. There are always options”, he says.
Jorge regards research as vital for “improving the lives of those of us who suffer from this disease”. This young engineer says that forming part of a clinical trial is a “great opportunity” that enables him to be one of the first to receive the new treatment.